Thursday, May 7, 2009

How to Squeeze a Tumor.

I took some time off. I had to get my head together. I spent some time feeling sorry for myself after my last measurement results, because that does still happen occasionally. That lasted about three days or until my doctors and my therapist set me straight. I don't know if I've mentioned my therapist yet, but they all put their own special perspective on this situation for me. Then I shifted my paradigm. You see, I still had the expectation of a 3cm or 5cm reduction. A reduction is still a reduction right? No matter how much it is. Hell, I'm still packing my robe and slippers in case they walk in and say, "time to go to surgery Jan".

My paradigm had to shift. So I took a break. I read Nancy and Bill™'s blog. http://web.me.com/nancyaskins/B&N_Journal/News_about_Bill/News_about_Bill.html "April 2009
Tumor recurrence, no viable treatment options, started hospice." Keep fighting Bill and stay strong.

My Carcinoid email buddy, Kristy, from North Carolina passed away. Her tumors had spread and they lost control. http://www.phish.com/news/index.php?year=2009 Her last email to me was positive and strong. "Something would work. It had to." She was even looking forward to her college reunion in 2010. Kristy started the Carcinoid group on our CSC site. She was a great inspiration and teacher to those of us who were new to this type of cancer. She gave great advice and was an awesome cheerleader.

I took some time off and I got my perspective back. It took understanding how lucky I really am for optimism to resurface. Thank goodness, I did get my perspective back.

So let's start this again blog from the beginning: My April measurement results were GREAT. The tumor reduced in size by 1/2 cm. We're still in control and we are still getting reduction.

How to squeeze a tumor? I thought is was a better title than putting "Jan's Loses Her Perspective, But Gets it Back". At least three doctors in the last 2 months, I think the tall Italian fellow was a doctor, squeezed the hell out of tami. The smallest ones seem to do the most squeezing. They get on their tip toes and sort of lunge at the tumor. (I won't name names.) The mechanics behind actually getting under my ribs and putting hands on the tumor is quite taxing for both the doctor and myself. Sharon and Julie usually just think it's funny. Don't ask to squeeze tami unless you actually have a PHD and are technically an oncologist or an acupuncturist. (Oh yeah, I have one of those now as well.)

A lot has happened this past month. I'll be more diligent in the future about posting on the blog. Thanks for the support, the cards and notes. I'm still doing great. Really. I'm still a smartass so that's a good sign. And I am very thankful, so thankful, that we are still in control.

smack, smack,
jan

PS. Rest now Kristy. You will be missed.

4 comments:

Rachel Ganzon said...

Stay optimistic (I just watched Michael J. Fox's thing last night--all about optimism). We are all behind you.
love, love, and more love,
R, K, & B

The Bills Family said...

Have been waiting eagerly for a post. Sending vibes galore.

Ellen said...

I'm so glad you're posting again, and happy you've regained perspective. Sending lots of positive energy to Houston...

Miranda and Roger said...

hey i'm still glad you're a smartass... i've missed it already!