Friday, September 11, 2009

Benched-Blogpost

So, I've been benched for a few weeks...sort of.

I didn't receive my latest scheduled dose of Avastin today, in hopes that by skipping this one dose, it will allow a wound to heal. Prolonged use of Avastin makes it difficult for wounds or infections to heal regardless of whether it's a scrape, bruise, or other stuff. I would also be unable to have any sort of surgical or dental intervention for a few weeks if needed. Of course, surgical intervention will be needed one day.

I'll skip about seven days of the Rad001 as well. The discomfort experienced, both physically and mentally, for the last few weeks trying to take care of the problem myself has been pretty high on the pain management scale. Dr. F and study RN Carmen both felt like it was the way to go after a lengthy exam and lecture with handouts today. Of course they had to deal with an impressive, 30 minute argument/tantrum from me over this decision, but I finally relented. Evidently I can miss up to three doses of the Avastin (which I have no intention of doing) without any significant issues. Really? That makes me laugh just typing it.

As far as the "wound" goes... I have a cancerous tumor in my gastrointestinal system. Specifically on my liver, which is a major organ in the gastro-nebula. "The gastrointestinal tract (GIT) consists of a hollow muscular tube starting from the oral cavity, where food enters the mouth, continuing through the pharynx, esophagus, stomach and intestines to the areas where food is expelled." There is no end to the havoc one can have wreak on this system. There is also no end to the countless hours I spend conjuring up analogies for the experiences I'm having so I don't have to say the words for any of the areas where food is expelled. I try to use clever metaphors and then have health-care professionals or friends look at me as though I'm crazy and say things like "now who did this to you?" "Explain to me what a Pantone color is." Or my new favorite, "Now what does a pastry bag have to do with this again?" Unsuccessful metaphors that usually involve Italian words I don't know, cake decorating accoutrement and/or farm analogies. Sigh. (sigh with me here) I think I'm making it too hard. For the sake of my sanity and retaining any semblance of dignity, I'll let you come up with some creative wound/infection I might have on your own. Call it an interactive blog.

My great friend Susan D. accompanied me to this one. She's a great advocate for me. It was a very quick trip obviously. During the appointment she was snapping (photos) away like a mad woman. One of her many careers is documentary photography. Lot's of photos. I'll save them for the book. Susan knows a lot of stuff, but she didn't know cows don't have testicles.

Peace, love and healing. Super fast healing.
jan

PS. Never forget 9-11-01